Events

Thank You 2021 Sponsors and Save the Date for NOTA Camp 2023.

A huge THANK YOU to the families who attended our 2022 NOTA Family Weekend at Rocking Horse Ranch in New York. Our second visit to the ranch was filled with horseback riding, swimming and other fun activities, as well as more time for community discussion. Special thanks to the Rocking Horse Ranch for hosting us on their 500 acre resort and for accommodating our dietary needs. And we could not have done it without our sponsors, Cycle, Sobi, Cambrooke and Nexus Patient Services!

Save the date for 2023 NOTA Family Weekend at Rocking Horse Ranch, Sept 28 - Oct 1. More info to come!

Here is a video summarizing the event.

2019 Photos! Victory Junction NOTA 2019 facebook album
2018 Photos! Victory Junction NOTA 2018 facebook album

Check out our 2022 Video

Thank you to the sponsors and participants in NOTA Camp 2021.

A huge THANK YOU to the families who attended our 2021 NOTA Family Weekend at Rocking Horse Ranch in New York. We had so much fun coming together as a community: horseback riding, swimming, rock climbing, playing laser tag, and so much more. Special thanks to the Rocking Horse Ranch for hosting us on their phenomenal 500 acre resort and for accommodating our dietary needs. And we could not have done it without our sponsors, Cycle, Sobi and Cambrooke!

Here is a video summarizing the event
Stay tuned for information about NOTA Camp 2022 coming soon!

2019 Photos! Victory Junction NOTA 2019 facebook album
2018 Photos! Victory Junction NOTA 2018 facebook album

3rd Annual NOTA Camp.

We regret to announce that the 3rd Annual NOTA Camp at Victory Junction, previously scheduled for Sept 2020, has been cancelled due to COVID-19.

After lengthy discussions with Victory Junction, we have decided to cancel the NOTA Camp that was scheduled for September 2020. Victory Junction has cancelled all of their spring and summer camps, and while they have not yet made a decision regarding fall camps, we just cannot feel comfortable encouraging our community to travel and to gather en masse at this time. While we’re certainly encouraged to see the rates of COVID-19 beginning to stabilize in some areas, we can’t predict if/when it may surge, and we still don’t know enough about this disease, or its impact on children, much less children with tyrosinemia.

Now for a little good news: the NOTA team is planning a few Special virtual events and activities to keep our community connected and to hopefully put some smiles on the faces of our kiddos. Stay tuned for more information!

And here are photos from previous camps, if you’d like to reminisce:

2019 Photos! Victory Junction NOTA 2019 facebook album
2018 Photos! Victory Junction NOTA 2018 facebook album