Free Goods Program

The Network of Tyrosinemia Advocates (NOTA) is a global community committed to supporting individuals and families affected by Tyrosinemia Type 1 (HT-1). We advocate for access to essential treatments and promote awareness of programs like the Free Goods Program, operated by Cycle Pharmaceuticals and managed by Inceptua Group. Our mission is to ensure that patients in underserved regions have the opportunity to receive life-saving therapy, regardless of geographic or financial barriers.

Treatment Across the Globe

Cycle Pharmaceuticals is committed to helping patients living with Tyrosinemia Type 1 (HT-1) or Alkaptonuria (AKU) access treatment in countries where rare disease medications are difficult to obtain or afford. A Free Goods Program, also recognized as a Special Access Scheme, Named Patient Program, or Compassionate Use Program, provides eligible patients with no-cost access to essential therapies. The program is owned by Cycle Pharmaceuticals and operated by Inceptua Group on Cycle’s behalf.

Who Is Eligible?

The Free Goods Program is available for patients with HT-1 or AKU who:

Countries currently served under this program include, but are not limited to:

Argentina

Bangladesh

Brazil

Chile

Colombia

Dominican Republic

Egypt

India

Indonesia

Jordan

Mexico

Morocco

Nepal

Nigeria

Pakistan

Peru

South Africa

Sudan

Tunisia

Turkey

This list is not exhaustive and may be updated at Cycle Pharmaceuticals’ discretion.

Commitment to Patients

Cycle Pharmaceuticals has formally embedded its responsibility for the Free Goods Program within its constitutional documents. In accordance with this commitment, Cycle provides product to eligible patients for the duration of their lifetime, subject to continued compliance with applicable requirements and program conditions.

The program has been active since 2018, with ongoing support for qualifying individuals worldwide.

For more information about the program

Requests to join this program must be made by a healthcare provider, and not directly by patients.

For more information about the program, a healthcare provider will need to contact Inceptua at [email protected] or + 44 20 3910 7670. Requests should not include information that identifies the patient.

Additional Information

Participation in the Free Goods Program is subject to specific terms and conditions. Healthcare providers should consult the Cycle Pharmaceuticals website for complete program details, eligibility requirements, and current policies.